Temporary Logo

Welcome

I've been looking for some other CP/IP (Chronic/Intractable Pain) patients who would like to contribute to this site, whether one time, sporadic, or regularly. If anyone is interested, please email me at IntractablePainKills@gmail.com

I'm also open to any suggestions about improving the blog.

IF YOU WOULD LIKE TO COMMENT ON ANY POST, PLEASE CLICK ON THE TITLE TO LOAD THE INDIVIDUAL POST.


DUE TO A GLITCH IN BLOGGER, MY POSTS DO NOT ALWAYS POST IN ORDER BECAUSE THEY POST USING THE TIME THAT I STARTED THE INITIAL DRAFT. I DO MY BEST TO CORRECT THIS WHENEVER POSSIBLE, HOWEVER SOME SLIP BY, SO PLEASE REMEMBER TO READ THE TITLES OF MORE THAN JUST THE MOST RECENT POST IF YOU DON'T WANT TO MISS ANYTHING.

Sunday, January 4, 2015

Pheonix

I'm naming this post Pheonix because it is the rebirth of this blog. After Google AdSense stole almost $200 from me at the same time that I found out that my PCP (and opioid prescriber for myself and my wife) was moving to Mississippi and no one wanted to take over. I truly apologize for abandoning my blog and readers. My pain has also been completely out of control for about 8 months. Now that Christmas is over with and my life is slightly less hectic, I'm hoping to revive IPkills and possibly even expand it.

If anyone has any suggestions, I'd be more than happy to read them.

My pain is still out of control, but I'm having better luck preventing it from controlling my life. My wife recently had a consultation at Hershey Medical Center's Pain Management office. Unlike last time, she was treated with dignity and respect. The doctor said that her only option would be an intrathecal pump. Unfortunately, the contracted amounts for all five Medicaid HMOs are below the cost of the device itself (they'd lose money on the device, plus get paid NOTHING for the OR time, equipment, nursing staff, and medications given while an inpatient), the doctor himself and the anesthesiologist would be paid separately. They refuse to implant a pump unless the HMO makes a exception to the payment terms and pays every present that the hospital demands. Because of this, exactly one Medicaid patient has received a pump there in the last five years. Technically, since they signed the contract, denying her a pump on financial grounds is Medicaid Discrimination (they can lose all government contracts if they aren't careful), but that's even more of an uphill battle than getting the HMO to pay a reasonable reimbursement amount for an intrathecal pump.

This sounds negative, I know, but this is the most progress that either of us have made in years. This also gives me hope that I might be able to convince one of them to implant and manage a pump for me.

My wife and I have bad massive increases in pain over the past few years with no dose increase in 3+ years and the climate of Opiophobia is making it almost impossible to keep our current doses where they are, much less get the much needed dose increases. This is causing a marked decrease in function for both of us, but, thankfully, my wife's great aunt is helping us by picking up the slack. Our daughter is still doing extremely well in school and we've been able to volunteer at her school.

I hope this crude update gets most of you up to date on my situation and I hope to provide you with useful Intractable Pain related articles, links, and other useful information.

-Steve
Intractablepainkills@gmail.com

P.S. I plan on migrating this blog from intractablepainkills.blogspot.com to IPkills.cf, so keep an eye out for updates.

Thursday, July 3, 2014

Scared

My wife and I had our quarterly pain follow up appointments with our PCP Wednesday afternoon. We always schedule two appointments ahead so that we don't have any problems getting in. When we reminded the receptionist that the appointment in three months wasn't adequate and she needed to schedule one in six months, she let slip the information that our doctor is leaving in four months. He has NO PLAN moving forward and hasn't even talked to any of the other providers in the office about taking on our cases. Every pain management office has refused our cases because they're medication management cases, which means that they can't make obscene money. The other doctors in the office have been extremely vocal about their objections regardless his management of our case. There are a few new providers that haven't chimed in, but two of them are PA-Cs (physician's assistants), which can't prescribe CIIs.

Steve

Monday, June 16, 2014

Promising Results for New Trigeminal Neuralgia Drug - National Pain Report

Promising Results for New Trigeminal Neuralgia Drug - National Pain Report
http://bit.ly/1uzi9kP

This is a novel compound, not a patent extension or reformulation. It's another sodium channel blocker, but it is being specifically developed for Trigeminal Neuralgia. I doubt this will be a game changer, but I do believe that having another treatment option has the potential to help many people.

Saturday, June 14, 2014

Updated "About Me"

If anyone is interested, I've updated the "About Me" section


-----Updated Text-----
I apologize for not updating this part of my site for a while, but I've been fighting with the incompetent, ignorant, rude imbeciles who run CYS (Children & Youth Services) for over six months concerning my wife's and my need for prescription opioids. I've been told that they've never gone after people as hard as they've been going after us, that includes heroin addicts and crack whores. They routinely lie on court paperwork, leak confidential records, commit perjury, and they're constantly change their story & accusations. We've had to prove that we are ill enough to require opioids, but not too ill that we can't care for our daughter. Thankfully, our family doctor has not abandoned us. He knows how much these medications help us and he knows that our daughter is well taken care of. Thankfully, my state has never had a law allowing children to be taken from disabled parents and there are federal laws (i.e. Americans with Disabilities Act) that protect us, slightly. Unfortunately, we still have to prove that our medical conditions don't prevent us from caring for our daughter. Aside from our doctor, we have our almost useless lawyer who can't schedule a meeting, and a great subcontracted (not a CYS employee) parent educator who isn't afraid to tell the truth, even if it isn't popular and even if it contradicts her conclusions. We've also been complying with their ridiculous WEEKLY urine drug testing (costs taxpayers $100/test per person). I really wish that they'd switch to saliva testing, or better yet hair testing, which covers the last 3 months (more, if you're willing to pay for it) instead of the 2-3 days that UDT (urine drug testing) covers. I did the math once and found out that you could buy a VERY nice car with the money that they've spent harrassing us and violating our rights. Privacy is a thing of the past.

Friday, June 13, 2014

Pills for Breakfast: Five Things I Wish I Knew Sooner About Chronic Pain - NPR

Pills for Breakfast: Five Things I Wish I Knew Sooner About Chronic Pain- National Pain Report
http://bit.ly/1uVOIve

I'm sure we all have many things we'd line to add (feel free to list them in the comments below), but this it's a great article.

Steve