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Welcome

I've been looking for some other CP/IP (Chronic/Intractable Pain) patients who would like to contribute to this site, whether one time, sporadic, or regularly. If anyone is interested, please email me at IntractablePainKills@gmail.com

I'm also open to any suggestions about improving the blog.

IF YOU WOULD LIKE TO COMMENT ON ANY POST, PLEASE CLICK ON THE TITLE TO LOAD THE INDIVIDUAL POST.


DUE TO A GLITCH IN BLOGGER, MY POSTS DO NOT ALWAYS POST IN ORDER BECAUSE THEY POST USING THE TIME THAT I STARTED THE INITIAL DRAFT. I DO MY BEST TO CORRECT THIS WHENEVER POSSIBLE, HOWEVER SOME SLIP BY, SO PLEASE REMEMBER TO READ THE TITLES OF MORE THAN JUST THE MOST RECENT POST IF YOU DON'T WANT TO MISS ANYTHING.

Sunday, January 4, 2015

Pheonix

I'm naming this post Pheonix because it is the rebirth of this blog. After Google AdSense stole almost $200 from me at the same time that I found out that my PCP (and opioid prescriber for myself and my wife) was moving to Mississippi and no one wanted to take over. I truly apologize for abandoning my blog and readers. My pain has also been completely out of control for about 8 months. Now that Christmas is over with and my life is slightly less hectic, I'm hoping to revive IPkills and possibly even expand it.

If anyone has any suggestions, I'd be more than happy to read them.

My pain is still out of control, but I'm having better luck preventing it from controlling my life. My wife recently had a consultation at Hershey Medical Center's Pain Management office. Unlike last time, she was treated with dignity and respect. The doctor said that her only option would be an intrathecal pump. Unfortunately, the contracted amounts for all five Medicaid HMOs are below the cost of the device itself (they'd lose money on the device, plus get paid NOTHING for the OR time, equipment, nursing staff, and medications given while an inpatient), the doctor himself and the anesthesiologist would be paid separately. They refuse to implant a pump unless the HMO makes a exception to the payment terms and pays every present that the hospital demands. Because of this, exactly one Medicaid patient has received a pump there in the last five years. Technically, since they signed the contract, denying her a pump on financial grounds is Medicaid Discrimination (they can lose all government contracts if they aren't careful), but that's even more of an uphill battle than getting the HMO to pay a reasonable reimbursement amount for an intrathecal pump.

This sounds negative, I know, but this is the most progress that either of us have made in years. This also gives me hope that I might be able to convince one of them to implant and manage a pump for me.

My wife and I have bad massive increases in pain over the past few years with no dose increase in 3+ years and the climate of Opiophobia is making it almost impossible to keep our current doses where they are, much less get the much needed dose increases. This is causing a marked decrease in function for both of us, but, thankfully, my wife's great aunt is helping us by picking up the slack. Our daughter is still doing extremely well in school and we've been able to volunteer at her school.

I hope this crude update gets most of you up to date on my situation and I hope to provide you with useful Intractable Pain related articles, links, and other useful information.

-Steve
Intractablepainkills@gmail.com

P.S. I plan on migrating this blog from intractablepainkills.blogspot.com to IPkills.cf, so keep an eye out for updates.