Pages

Thursday, September 5, 2013

Update

My back is killing me, my legs are even worse. I wish that I could impart some wisdom, but days like today are for watching TV and waiting for them to pass.

I'd like to invite anyone and everyone who has any questions, or needs advice on handling their doctors.

A little more about me

I had an intrathecal morphine pump trial June 24-26, 2011. It was wildly successful, but the pain management office that works with my Neurosurgeon declined me as a patient because I was already taking a high opioids (which is necessary to qualify for the procedure and I was told that I couldn't even be on hydrocodone/acetaminophen if I wanted to be CONSIDERED as a patient), so they doesn't implant the pump. I still haven't found am office willing too implant one for several reasons
1) liability- my brainstem tumor will kill me by growing enough that it stops my breathing and/or heart, this will mimic opioid overdose
2) I am on a high dose of Duragesic (fentanyl) patches, but I could easily discontinue them with an intrathecal pump
3) my age,  I am 23 years old, I was 21 at the time.

-Steve

"The problem with the world is that the intelligent people are full of doubts while the stupid ones are full of confidence."
- Charles Bukowski

Posted from Blogger for Android