Welcome to my blog. This blog is dedicated to everyone who's told me over the years that I should start one and to every chronic pain and intractable pain suffers, their friends and families, and the doctors who do their best to help us.
About Me- I have suffered from intractable pain since 2009. I have suffered from chronic pain since I slept in a crib. I have an inoperable brainstem tumor, specifically a DIPA/DIPG (Diffuse Intrinsic Pontine Astrocytoma/Glioma) that was found January 8, 2006 and diagnosed April 1, 2008. I also helped found the Central Pain Syndrome Foundation. After significant hesitation, I tried opioids. Once I reached "high" doses, my pain significantly improved,until the dose was reduced. I still take a somewhat high dose of Duragesic.
My wife also has intractable pain, so I've been a caregiver as well.
My daughter started kindergarten last week. She is staying with my father while we wait on housing assistance because we lost our home after my mother-in-law passed away and doesn't leave any money to cover the mortgage. We're staying with my wife's great aunt, but the house is not suitable for a child and her wellbeing is too important to even consider her living here.
I'd like to end my first post with a few reading suggestions
The Intractable Pain Patients' Handbook for Survival
High Dose Fentanyl for Cancer Pain
-Steve