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I've been looking for some other CP/IP (Chronic/Intractable Pain) patients who would like to contribute to this site, whether one time, sporadic, or regularly. If anyone is interested, please email me at IntractablePainKills@gmail.com

I'm also open to any suggestions about improving the blog.

IF YOU WOULD LIKE TO COMMENT ON ANY POST, PLEASE CLICK ON THE TITLE TO LOAD THE INDIVIDUAL POST.


DUE TO A GLITCH IN BLOGGER, MY POSTS DO NOT ALWAYS POST IN ORDER BECAUSE THEY POST USING THE TIME THAT I STARTED THE INITIAL DRAFT. I DO MY BEST TO CORRECT THIS WHENEVER POSSIBLE, HOWEVER SOME SLIP BY, SO PLEASE REMEMBER TO READ THE TITLES OF MORE THAN JUST THE MOST RECENT POST IF YOU DON'T WANT TO MISS ANYTHING.
Showing posts with label Longterm Opioids. Show all posts
Showing posts with label Longterm Opioids. Show all posts

Thursday, June 5, 2014

My Story: The Dark Side of the Anti-Opioid Campaign - National Pain Report

My Story: The Dark Side of the Anti-Opioid Campaign - National Pain Report
http://bit.ly/1unVrhi

This article, and the comments, really say it all. The anti-opioid propagandists are doing nothing to fight drug addiction, but their restrictions are destroying HUNDREDS OF MILLIONS of lives. Even the lucky few who have prescriptions are afraid to sneeze wrong or risk being cold turkeyed.

Tuesday, May 27, 2014

Xartemis XR

I recently saw an advertisement for Xartemis XR. The new opioid is overpriced, completely unnecessary, and dangerous. Xartemis XR is essentially OxyContin with acetaminophen (INN: paracetamol), aka Tylenol, added. Tylenol alone kills or hospitalizes more people than all legal opioids combined. The US government has a campaign against the unnecessary use of acetaminophen because of the hepatotoxicity of acetaminophen, even when used within guidelines.

Daily intake of acetaminophen (APAP) should not exceed 2600-3000mg (THREE GRAMS) per day and it should NEVER be taken on a regular basis because even normal doses of acetaminophen can be toxic after two weeks.

Tylenol is added to Percocet & Vicodin for ONE REASON, as an abuse deterrent. Unfortunately, that doesn't work, people just get acetaminophen poisoning.


Extended release opioids are primarily intended for long term use by chronic pain patients, so who is this stupid product intended for?


Xartemis XR (oxycodone/APAP extended release) is a SCAM to extort more money from insurance companies and cash in on the current climate of opiophobic hysteria. If your doctor tries to prescribe this for you, ask them why they are giving you an expensive name brand drug that is inferior to the generic alternatives and push for something better.

Monday, May 12, 2014

Why are patients shut out of the debate over prescription pain medicine? - The Washington Post

Why are patients shut out of the debate over prescription pain medicine?- The Washington Post
http://wapo.st/1j9NRo1

This article really says it all, well maybe not everything, but they hit the major points. Please read it in its entirety

Saturday, May 10, 2014

Opiophobia & Insurance

It has come to my attention that more and more insurance companies are refusing to cover pain management, opioids, longterm opioids, and/or procedures. Or, no PMs in network and within a reasonable distance.

I've heard of this occurring with Medicaid (parts of Florida), HeritageCare (parts of Florida), and private insurance (some BlueCross BlueShield plans) and I find this very worrisome.

I would appreciate it if anyone who knows about specific cases of this would common below and/or email me (please specify whether or not I may publish the information you email me). Please include:
* the type of discrimination (higher copay, unrealistic quantity limits, prior authorization on generics, duration limits, PMs not covered or not in network, PMs who practice opioids not in network, etcetera)
* the company name
* the type of plan (Medicare Part D, Medicare Advantage, Medicaid, Medicaid HMO, private insurance HMO, private insurance PPO, private POS, private FFS, ACA exchange, Tricare, VA, etcetera)
* state
* description.

If anyone knows about any petitions focused on this issue, please add them as comments and/or email them to me.

We cannot allow this practice to continue or, even worse, spread.

Steve
IntractablePainKills@gmail.com

Sunday, May 4, 2014

The Problem With Pain Pills: A Letter to Mr. Barry Meier and The New York Times

The Problem With Pain Pills: A Letter to Mr. Barry Meier and The New York Times
http://bit.ly/1iZROKS

This amazingly well balance article is a response to a highly irresponsible article that was in the New York Times, and reposted on DrugFree.org

I highly recommended that you all read both, but remember that the NYT article is a highly misinformed, highly opinionated EDITORIAL article.

Tuesday, April 8, 2014

Naloxone Part 2

To clarify... The government is advocating it's use in pain patients who are BELIEVED to be in overdose. The problem is that most people can't tell an overdose from fatigue or the flu. Intractable pain patients on opioids are usually opioid tolerant and naloxone/Narcan/Evzio causes abrupt withdrawal. In a patient who actually needs opioids (intractable pain patient, not drug addict), this abrupt withdrawal can trigger a heart attack.

This is unnecessary because...
If pain patient (or addict) overdoses, the symptom is respiratory depression, which can be overcome with oxygen, BiPAP, and/or CPR. This product is intended to reverse believed overdose while waiting for an ambulance, but CPR has been fine for years.

Naloxone/Narcan/Evzio reverses the opioids, which is fine for an opioid-naive patient, but this device is only for opioid tolerance patients.

With so many family members not understanding us and many being called druggies, would you really want them wielding an opioid blocker? I can easily see easy access to naloxone leading to pain patients (& addicts) being forcefully injected with naloxone against their will to "prove" to them that they're an addict (those people never understand the different being addiction and tolerance & physical dependence).

This product should only be prescribed directly to the addict or pain patient, not "concerned family members" WITH THEIR PERMISSION. It should be treated like Antabuse (giving to someone without permission is forbidden and legally considered poisoning, and carries a black box warning).

Steve

Sunday, March 30, 2014

American Pain Rights Act Petition

American Pain Rights Act Petition
http://bit.ly/1dGT7h6

My comment:
I'm a cancer patient with severe intractable pain. Because of the rampant Opiophobia caused by the epidemic of anti-opioid propaganda, I can no longer get adequate treatment. Pain patients aren't addicts and we aren't criminals, we didn't choose to live in pain 24/7. We are treated as guilty the moment we walk into the doctor's office, hospital, or pharmacy. Addiction among chronic pain patients is extremely rare (3-7 patients per thousand). Those of its who take our medications as prescribed should NEVER been punished because an minority of people abuse these essential medications.

Drug abusers will get opioids no matter what. These opiophobic policies harm pain patients, but have no effect on addicts other than to raise street prices on pharmaceutical opioids and force them to switch to heroin (diacetylmorphine/diamorphine), which is much more dangerous because they cannot accurately determine dose. There are even a subset of extremely desperate pain patients (mostly in Florida) who have resorted to heroin for pain relief. No one should have to turn to the streets for medical care.

For intractable pain patients, like myself, there is no alternative to opioids. Before doctors prescribe opioids, they make us try dozens of other treatments (with serious side effects).

Opioids aren't nearly as dangerous as NSAIDs or acetaminophen, each of which kill more people each year than all opioids combined.

Overcoming Opiophobia
http://bit.ly/Opiophobia

The Intractable Pain Patients' Handbook for Survival
http://bit.ly/PainGuidePDF

Thursday, March 6, 2014

BALANCED Opioid Article

It's unprecedented, but the media has finally realized that the patients' perspective in the debate over prescription opioids belongs in the article, not the comments section.

I urge you to read and pass along this well written, well thought out article...

Why are patients shut out of the debate over prescription pain medicine? - The Washington Post

http://wapo.st/P6xOuA

Saturday, January 25, 2014

Opioids Aren't Increasing Your Pain, but those "non-narcotic" Alternatives Might

Anyone who has read Dr. Forest Tennant's Intractable Pain Patients' Handbook for Survival or Overcoming Opiophobia knows that, contrary to popular belief, opioid pain medications do not cause pain and doctors are lying or ignorant if they tell you that they do. Unfortunately, opioids are all too frequently blamed for chronic pain. Yes, there are a handful of people who experience an increase in pre-existing pain from truly high doses of opioids. These incredibly rare cases have very specific diagnostic criteria and simply still being in pain on opioids doesn't indicate OIH, especially without a worsening of pain with each dose increase. This is seen as a tool to convince CP/IP patients and their caregivers to "free" the CP/IP patients from the treatments that actually relieve pain (mu-opioids & methadone).
"No magic bullet. The worst propaganda being pushed upon all chronic pain patients, including those with and without intractable pain are the illusive "magic bullet" formulas being advanced by either pharmaceutical and medical device industries, unethical practitioners and some health plans and government agencies...The worst deception these days is the fraudulent pitch that pain can be cured by stopping all medications, as if control is the cause!!"
-Forest Tennant MD PhD
...Here comes the irony... (sorry for the long preamble)
As it turns out, the medications that the OIH proponents prescribe and recommend most often (serotonin increasing antidepressants, like serious SSNRIs, MAOIs, TCAs, & atypical antidepressants, like Remeron/mirtazapine) could be what is actually worsening pain in chronic pain patients! Seriously! How's that for irony? Not only are these doctors manipulating their patients out of effective treatments, but they may actually be making their pain worse with these psychotropic medications (plenty of which are neurotoxic).
Remember, procedures and surgeries are high & ultra high (respectively) profit while doctors get paid NOTHING for writing prescriptions and controlled substances (especially CIIs, like opioids) require even more non-reimbursed time thanks to the overstepping DEA, overzealous prosecutors, strict regulations, and public backlash thanks to an extremely small percentage of hefty doctors who ran already illegal pull mills.
~~While I can understand hesitating to risk your medical license, freedom, career, home, and the hundreds of thousands of dollars that must be spent to defend the criminal charges (still lose medical license & career), it is completely unethical to manipulate a patient into believing a lie so that you can commit malpractice by unilaterally rejecting an entire treatment modality without reasonable cause. I've had several PMs tell me that opioids are my best and/or only option, but they don't personally prescribe. That's horrible, but at least they didn't lie to or attempt to manipulate me like the PMs at Hopkins & UPenn did (unfortunately, this behavior is on the rise and more than half of all PMs engage in this kind of inappropriate behavior)~~
Notes:
* The only non-serotonin antidepressant is buproprion/Wellbutrin/Budeprion
* There is one antidepressant that actually enhanced serotonin reuptake (gets rid of the old, useless serotonin), however the FDA has not approved it (likely to avoid pissing off the multibillion dollar pro-serotonin antidepressant industry). For those of you outside the USA, the only commercially SSRE (Selective Serotonin Reuptake Enhancer) is called tianeptine/Stablon/Coaxil/Tatinol
* The National Pain Report article is based on a medical journal article in Neuron named "Central Terminal Sensitization of TRPV1 by Descending Serotonergic Facilitation Modulates Chronic Pain"
http://www.cell.com/neuron/retrieve/pii/S0896627313011410
http://bit.ly/1aRrRbU
* If anyone reading this believes that they may have OIH (or knows anyone who believes that they have OIH), PLEASE email me! I'd greatly appreciate the chance to discuss it with you. If you're interested, I'll also provide you with information to help you determine if you actually have OIH.