Intractable pain (IP) kills, even if it doesn't literally kill you, it steals your life. I've devoted this blog to everything and anything to do with living with IP. There are some posts that aren't directly related to CP/IP (chronic pain/intractable pain), and they're marked OT. I'm also interested in allowing my followers to contribute your stories (overall story and/or day to day stories). If you'd like to contribute please email me at IntractablePainKills@gmail.com.
Welcome
Saturday, June 14, 2014
Updated "About Me"
-----Updated Text-----
I apologize for not updating this part of my site for a while, but I've been fighting with the incompetent, ignorant, rude imbeciles who run CYS (Children & Youth Services) for over six months concerning my wife's and my need for prescription opioids. I've been told that they've never gone after people as hard as they've been going after us, that includes heroin addicts and crack whores. They routinely lie on court paperwork, leak confidential records, commit perjury, and they're constantly change their story & accusations. We've had to prove that we are ill enough to require opioids, but not too ill that we can't care for our daughter. Thankfully, our family doctor has not abandoned us. He knows how much these medications help us and he knows that our daughter is well taken care of. Thankfully, my state has never had a law allowing children to be taken from disabled parents and there are federal laws (i.e. Americans with Disabilities Act) that protect us, slightly. Unfortunately, we still have to prove that our medical conditions don't prevent us from caring for our daughter. Aside from our doctor, we have our almost useless lawyer who can't schedule a meeting, and a great subcontracted (not a CYS employee) parent educator who isn't afraid to tell the truth, even if it isn't popular and even if it contradicts her conclusions. We've also been complying with their ridiculous WEEKLY urine drug testing (costs taxpayers $100/test per person). I really wish that they'd switch to saliva testing, or better yet hair testing, which covers the last 3 months (more, if you're willing to pay for it) instead of the 2-3 days that UDT (urine drug testing) covers. I did the math once and found out that you could buy a VERY nice car with the money that they've spent harrassing us and violating our rights. Privacy is a thing of the past.
Saturday, May 10, 2014
Opiophobia & Insurance
It has come to my attention that more and more insurance companies are refusing to cover pain management, opioids, longterm opioids, and/or procedures. Or, no PMs in network and within a reasonable distance.
I've heard of this occurring with Medicaid (parts of Florida), HeritageCare (parts of Florida), and private insurance (some BlueCross BlueShield plans) and I find this very worrisome.
I would appreciate it if anyone who knows about specific cases of this would common below and/or email me (please specify whether or not I may publish the information you email me). Please include:
* the type of discrimination (higher copay, unrealistic quantity limits, prior authorization on generics, duration limits, PMs not covered or not in network, PMs who practice opioids not in network, etcetera)
* the company name
* the type of plan (Medicare Part D, Medicare Advantage, Medicaid, Medicaid HMO, private insurance HMO, private insurance PPO, private POS, private FFS, ACA exchange, Tricare, VA, etcetera)
* state
* description.
If anyone knows about any petitions focused on this issue, please add them as comments and/or email them to me.
We cannot allow this practice to continue or, even worse, spread.