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Welcome

I've been looking for some other CP/IP (Chronic/Intractable Pain) patients who would like to contribute to this site, whether one time, sporadic, or regularly. If anyone is interested, please email me at IntractablePainKills@gmail.com

I'm also open to any suggestions about improving the blog.

IF YOU WOULD LIKE TO COMMENT ON ANY POST, PLEASE CLICK ON THE TITLE TO LOAD THE INDIVIDUAL POST.


DUE TO A GLITCH IN BLOGGER, MY POSTS DO NOT ALWAYS POST IN ORDER BECAUSE THEY POST USING THE TIME THAT I STARTED THE INITIAL DRAFT. I DO MY BEST TO CORRECT THIS WHENEVER POSSIBLE, HOWEVER SOME SLIP BY, SO PLEASE REMEMBER TO READ THE TITLES OF MORE THAN JUST THE MOST RECENT POST IF YOU DON'T WANT TO MISS ANYTHING.
Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts

Friday, June 6, 2014

10% effective, 7.7 billion dollars (Fibromyalgia Blockbuster Drugs)

Fibromyalgia Drugs: Successes or Failures? - National Pain Report
http://bit.ly/1gRHsrI

Tuesday, April 29, 2014

New Fibromyalgia Blood Test

New Fibromyalgia Blood Test is 99% Accurate - National Pain Report
http://bit.ly/1foViqE

Once this test is finally covered by insurance, the price will really drop, and clinical trials will actually be limited to Fibromyalgia patients and there is a chance that will finally get an FDA approved drug that treats Fibromyalgia (not the <10% effective psychiatric drugs that we have today).

The End of an Era in Fibromyalgia

The End of an Era in Fibromyalgia - National Pain Report
http://bit.ly/1ib3ES6

Thursday, April 24, 2014

Why not pot?

Marijuana Rated Most Effective for Treating Fibromyalgia - National Pain Report
http://bit.ly/1mGkviy

With 10% of patients getting relief from FDA approved "Blockbuster" drugs and well over half of Fibromyalgia patients getting relief from cannabis, why spend ~$300/month for toxic drugs when safe, all natural cannabis can be grown at home for roughly free?

Simply...
Drug companies make billions by keeping cannabis illegal through corruption & big money in politics

The most effective drugs don't get approved without patent protection (cannabis, ibogaine, and countless others)

The worst part is that cannabis is the safest drug of all time (ZERO deaths in the thousands and thousands of years of recorded use) and Cymbalta/duloxetine, Lyrica/pregabalin, and Savella/milnacipran kill countless people every year.

Thursday, March 27, 2014

FDA Approves First Device to Prevent Migraines - National Pain Report

FDA Approves First Device to Prevent Migraines - National Pain Report
http://bit.ly/1eWKqO2

Feds Investigate Walgreens Over Privacy Concerns - National Pain Report

Feds Investigate Walgreens Over Privacy Concerns - National Pain Report
http://bit.ly/1pefSuh

Anything to different from the discrimination of CP/IP patients.

Drug Maker Blames ‘Misinformation’ for Zohydro Controversy - National Pain Report

Drug Maker Blames ‘Misinformation’ for Zohydro Controversy - National Pain Report
http://bit.ly/1peed85

FDA Hears From Fibromyalgia Patients - National Pain Report

FDA Hears From Fibromyalgia Patients - National Pain Report

http://bit.ly/1pec1gP

Don't forget to read the comments.

Thursday, March 13, 2014

FDA approved Fibromyalgia drugs cause side effects more often than relief

Drugs for Fibromyalgia: How Good Are They?- National Pain Report
http://bit.ly/O4OAth

Lyrica provides relief for 10% of patients, Cymbalta 6%, and Savella 8-10%.

Technically, 1 in 10 patients reporting significant relief from Lyrica/pregabalin is better than placebo, which is all that the FDA requires for approval (the major flaw in the FDA approval process).

"In the case of Lyrica, randomized controlled trials have shown that doses of 600 mg daily produce drowsiness in 15-20% and dizziness in 27% to 46%.

Other side effects include dry mouth, weight gain, peripheral oedema (swelling). In another important review, it was found that treatment was discontinued due to adverse events in one out of 4 patients."

Fibromyalgia patients deserve pain medication, not placebos that cause massive weight gain and fatigue.

For those that get relief from them, opioids (as well as Xyrem/sodium oxybate) should be made available to them. Enough of these useless antidepressants. Enough of making Fibromyalgia patients feel bad because they don't respond to these useless drugs. Enough of shaming Fibromyalgia victims for requiring opioids.

Chronic & Intractable pain victims are not addicts and we are not criminals. We shouldn't be treated any different from a diabetic refilling his insulin, metformin, Actos, or Byetta.

It's bad enough that opioids are withheld from most chronic pain patients, especially Fibromyalgia patients, but to give them drugs that are useless for their pain condition (they might help for depression), all while telling them that the drugs are specifically approved for their condition, is inhumane and cruel.

-Steve

"In summary, a minority of patients will report substantial benefit with Lyrica, and more will have moderate . Many will have no or trivial benefit, or will discontinue the drug because of adverse events."

“Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less, in human beings of whom they know nothing.”

"Those who have been awarded a diagnosis of fibromyalgia find themselves in a “double bind.”

On the one hand, the very diagnosis can arouse disbelief at all levels of society and, on the other hand, the available drugs afford most of them little, if any, relief of pain."

Tuesday, March 4, 2014

Article: Fibromyalgia Mystery Finally Solved! Researchers Find Main Source of Pain in Blood Vessels

Fibromyalgia Mystery Finally Solved!
Researchers Find Main Source of Pain in Blood Vessels

http://bit.ly/1c4Q0yu

This is a more laymen-friendly version of an article from several months ago that explains that Fibromyalgia isn't Psychiatric, but neuropathic. The pain is the result of abnormal nerve fibers, which improperly manage the blood vessels. This article focuses on the fact that Fibromyalgia is not Psychiatric, but I'll repost the more in depth article later.

The worst part is that, thanks to the War on Drugs, War on Doctors, and the newest war, the War on Patients, Fibromyalgia patients will still be given useless SSRIs (Prozac/fluoxetine, Paxil/paroxetine, Zoloft/sertraline, etcetera), SSNRIs (Cymbalta/duloxetine, Effexor/venlafaxine, Pristiq/desvenlafaxine,  tramadol/Ultram/Ryzolt, Nucynta/tapentadol, Savella/milnacipran, etcetera), and mood stabilizers (antipsychotics & anti-epileptics; gabapentin/Neurontin/Gralise, Lyrica/pregabalin, Lamictal, Abilify/aripiprazole, Seroquel, etcetera). Unfortunately, antiopioid propaganda and the DEA are preventing most physicians from prescribing pain medications for pain. Opioids are the safest (especially in the longterm), most efficacious (with adequate dosing) solution for any chronic pain condition.

Remember, acetaminophen/paracetamol/Tylenol alone kills more people than all opioids combined. NSAIDs aren't as deadly as acetaminophen/paracetamol, but they're still more deadly than opioids. Actually, even diacetylmorphine/diamorphine/Heroin rarely kills on its own, drug abusers die from mixed drug toxicity (combining alcohol and/or sedatives with opioids). Of course, opioid related deaths are almost all drug abusers. The statistics are never deaths caused by opioids, they're "opioid related deaths" or "drug related deaths", meaning any death that occurs with a drug peripherally involved, even if it is completely unrelated to the actual cause of death.

Steve

Wednesday, January 15, 2014

Fibromyalgia solved: Not in the mind, but a very real physical ailment | Washington Times

Fibromyalgia solved: Not in the mind, but a very real physical ailment | Washington Times
http://bit.ly/1eL1qpQ

Something that the CP/IP community has known for years...

... IT'S NOT ALL IN OUR HEADS!!!

Even for CP/IP sufferers without Fibromyalgia, this should be welcome news because most complex pain patients have at one time or another been told that it's "all in our heads" or it's Fibro, take some Prozac/Cymbalta/Lyrica/gabapentin.

I, myself, suffered throughout most of my childhood with excruciating pain caused by childhood Fibromyalgia. Of course, as a minor, I received no pain medication. I wasn't even given worthless antidepressants. I wasn't officially diagnosed with anything, I was told that I suffered from "growing pains" and every future complaint was promptly dismissed (yes, I'm bitter). As an adult, I was repeatedly misdiagnosed with Fibromyalgia only. I wouldn't have been so upset with this misdiagnosis if Fibromyalgia wasn't treated like a second class illness. Although I still do still suffer from Fibromyalgia, most of my pain is cancer pain with some Fibromyalgia "sprinkled" in between (the two are completely different for me).

Thank you to the researchers who took the time to show that we're in pain, not crazy.

-Steve