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Welcome

I've been looking for some other CP/IP (Chronic/Intractable Pain) patients who would like to contribute to this site, whether one time, sporadic, or regularly. If anyone is interested, please email me at IntractablePainKills@gmail.com

I'm also open to any suggestions about improving the blog.

IF YOU WOULD LIKE TO COMMENT ON ANY POST, PLEASE CLICK ON THE TITLE TO LOAD THE INDIVIDUAL POST.


DUE TO A GLITCH IN BLOGGER, MY POSTS DO NOT ALWAYS POST IN ORDER BECAUSE THEY POST USING THE TIME THAT I STARTED THE INITIAL DRAFT. I DO MY BEST TO CORRECT THIS WHENEVER POSSIBLE, HOWEVER SOME SLIP BY, SO PLEASE REMEMBER TO READ THE TITLES OF MORE THAN JUST THE MOST RECENT POST IF YOU DON'T WANT TO MISS ANYTHING.
Showing posts with label Alternatives. Show all posts
Showing posts with label Alternatives. Show all posts

Wednesday, May 28, 2014

Sham Medical Devices & "All-Natural" Treatments

I recently responded to a question about NEUROVA, a copy of TENS unit that doesn't require a prescription (a HUGE red flag).
This led me to the decision to write a post about scams. Scammers are taking advantage of chronic pain patients, especially desperate pain patients, and the current climate regarding opioids.
The most common scam medical devices are "electric stimulators", which are a cross between those electric weight loss belts from the 90s that were supposed to give you abs without working out and TENS units, they bypass FDA clearance & approval by calling them "electronic massagers". These "TENS" units are not the same thing as the more expensive FDA approved TENS units that treat pain, especially neuropathy. Any legal TENS unit (the devices that can treat pain) require a prescription. Really, anything that is supposed to treat pain but isn't approved by the FDA or a similar international agency is suspect. Prescriptions are required for all legitimate longterm pain treatments with only a few exceptions (even FDA approved OTC treatments, like acetaminophen/paracetamol/Tylenol and Ibuprofen/Advil/Motrin aren't safe and effective longterm chronic pain treatments without doctor supervision (which is why the label tells you to seek medical care if you haven't improved after a few weeks). Acetaminophen/APAP is hepatotoxic and NSAIDs cause stomach irritation and bleeding.
Anyway, back on track...
When it comes to sham medical devices and "all-natural" treatments, the websites are great places to found clues, the wording frequently gives them away. Examples of Ted flags include:
* bad mouthing other treatments, especially opioids
* vague explanations of how it works
* not listing ingredients
* anything that's "proprietary" or "patented"- Remember patenting doesn't mean it works, it means they filled some paperwork. If they're advertising or bragging about the patent, they're scraping bottom for ways to con you out of your limited resources
If you want all natural, drug free treatments, research & purchase specific supplements, not "proprietary blends". You can save a fortune by purchasing these ingredients in bulk and putting them in capsules by yourself. Amazon sells everything you need, if you're interested.











Disclaimer: The links above are affiliate links, which means that if you click either link and subsequently make any Amazon purchased I, or rather my daughter's college fund, will receive up to 2% of the purchase price of eligible items.

Tuesday, May 13, 2014

Can Grapes Reduce Pain and Improve Health?

Can Grapes Reduce Pain and Improve Health?- National Pain Report
http://bit.ly/1opU8hn

Thursday, May 8, 2014

Cymbalta Discontinuation Syndrome

Cymbalta Discontinuation Syndrome- Non-opioid Pain Medication
http://bit.ly/1jhmVSk

What a shock, SSNRIs (like Cymbalta/duloxetine) cause withdrawals!

Monday, April 28, 2014

Sativex Granted "Fast Track" Review

Marijuana Spray Gets ‘Fast Track’ Review from FDA - National Pain Report
http://bit.ly/1nAnkBC

As a cancer patient, I'm ecstatic about the possible approval of Sativex for cancer pain. I'm currently using Marinol/dronabinol, which is synthetic THC suspended in sesame oil, encapsulated in gelatin. It's terrible medication. The best thing is herbal cannabis, but Sativex is a close second. It's an all natural herbal tincture spray. It isn't just THC, it also includes plenty of CBD and every other cannabinoid.

Thursday, April 17, 2014

Study Finds Chinese Herb More Effective in Treating Rheumatoid Arthritis - National Pain Report

Study Finds Chinese Herb More Effective in Treating Rheumatoid Arthritis - National Pain Report

http://bit.ly/1eXCmcB

The herb is more effective than methotrexate, but easier on the body. When combined, the herb & methotrexate are even more effective than either individually.

Steve

Thursday, February 6, 2014

Medication alternative can make you worse

I don't want to discount the help that some people get from yoga, pilates, and similar regimens, but FAR too many people, including a frightening number of physicians, simply ASSuME that non-opioid, non-surgical, and non-medication treatments are safe. The common argument is that, even if these aren't effective, the benefit:risk ratio must be acceptable because they assume that these are safe. Any exercise program can exasperate CP/IP, but some of these risks are extremely severe.

NYTimes.com: How Yoga Can Wreck Your Body

From The New York Times:

How Yoga Can Wreck Your Body

Popped ribs, brain injuries, blinding pain. Are the healing rewards worth the risks?

http://nyti.ms/1jhFUNj

"Not just students but celebrated teachers too injure themselves in droves because most have underlying physical weaknesses or problems that make serious injury all but inevitable"

Medication alternative can make you worse

I don't want to discount the help that some people get from yoga, pilates, and similar regimens, but FAR too many people, including a frightening number of physicians, simply ASSuME that non-opioid, non-surgical, and non-medication treatments are safe. The common argument is that, even if these aren't effective, the benefit:risk ratio must be acceptable because they assume that these are safe. Any exercise program can exasperate CP/IP, but some of these risks are extremely severe.

NYTimes.com: How Yoga Can Wreck Your Body

From The New York Times:

How Yoga Can Wreck Your Body

Popped ribs, brain injuries, blinding pain. Are the healing rewards worth the risks?

http://nyti.ms/1jhFUNj

"Not just students but celebrated teachers too injure themselves in droves because most have underlying physical weaknesses or problems that make serious injury all but inevitable"

Monday, September 9, 2013

Bad Days

I've been having bad days for almost a month straight. Opioid pain medications are great, when they're dosed properly, but when the DEA has doctors too afraid to prescribe adequate doses, patients suffer.

As I continue to suffer through a flare without the Actiq/OTFC (or Fentora, Onsolis, Subsys, Lazanda, or Abstral), I can comprehend why some people resort to street drugs. I, myself, am allergic to morphine, which is the major active metabolite of diacetylmorphine. I'm lucky in a sense because my allergy to morphine protects me from any temptation that might arise on days like this when my pain is unbearable.

No one should get their medication from the streets, whether it be heroin/diacetylmorphine/diamorphine, morphine, oxymorphone/Opana, oxycodone/OxyContin/OxyIR/Roxicodone, hydromorphone/Dilaudid/Exalgo, hydrocodone/Norco/Vicodin, codeine, methadone, fentanyl/Sublimaze/Duragesuc, sufentanil/Sufenta, alfentanil/Alfenta/Rapifen, or any other opioid. Medications should be taken EXACTLY as prescribed by your doctor.

Now that my public service announcement is complete, I'm going to take my full dose of lorazepam and tizanidine and pray for some asleep.

Some non-opioid pain relief options (depending on your pain type) include:
* Ice/cold packs
* Heating pads
* benzodiazepines (if prescribed)
* muscle relaxers
* Ibuprofen/Advil/Motrin
* hot shower or bath
* massage
* meditation
* distraction (TV, movies, etcetera)
* comedy (endorphins)
* sex/orgasm (endorphins)

-Steve

Remember that you can share my blog on chronic, intractable pain at
http://bit.ly/IPkills

I'm always open to comments and suggestions:
IntractablePainKills@gmail.com