Temporary Logo

Welcome

I've been looking for some other CP/IP (Chronic/Intractable Pain) patients who would like to contribute to this site, whether one time, sporadic, or regularly. If anyone is interested, please email me at IntractablePainKills@gmail.com

I'm also open to any suggestions about improving the blog.

IF YOU WOULD LIKE TO COMMENT ON ANY POST, PLEASE CLICK ON THE TITLE TO LOAD THE INDIVIDUAL POST.


DUE TO A GLITCH IN BLOGGER, MY POSTS DO NOT ALWAYS POST IN ORDER BECAUSE THEY POST USING THE TIME THAT I STARTED THE INITIAL DRAFT. I DO MY BEST TO CORRECT THIS WHENEVER POSSIBLE, HOWEVER SOME SLIP BY, SO PLEASE REMEMBER TO READ THE TITLES OF MORE THAN JUST THE MOST RECENT POST IF YOU DON'T WANT TO MISS ANYTHING.

Thursday, September 5, 2013

Welcome

Welcome to my blog. This blog is dedicated to everyone who's told me over the years that I should start one and to every chronic pain and intractable pain suffers, their friends and families, and the doctors who do their best to help us.

About Me- I have suffered from intractable pain since 2009. I have suffered from chronic pain since I slept in a crib. I have an inoperable brainstem tumor, specifically a DIPA/DIPG (Diffuse Intrinsic Pontine Astrocytoma/Glioma) that was found January 8, 2006 and diagnosed April 1, 2008. I also helped found the Central Pain Syndrome Foundation. After significant hesitation, I tried opioids. Once I reached "high" doses, my pain significantly improved,until the dose was reduced. I still take a somewhat high dose of Duragesic.

My wife also has intractable pain, so I've been a caregiver as well.

My daughter started kindergarten last week. She is staying with my father while we wait on housing assistance because we lost our home after my mother-in-law passed away and doesn't leave any money to cover the mortgage. We're staying with my wife's great aunt, but the house is not suitable for a child and her wellbeing is too important to even consider her living here.

I'd like to end my first post with a few reading suggestions

The Intractable Pain Patients' Handbook for Survival

Overcoming Opiophobia

High Dose Fentanyl for Cancer Pain

-Steve